Rallying call to help tot Joshua

Joshua with his legal guardian Sarah Duane (right) and Christine Mason
Joshua with his legal guardian Sarah Duane (right) and Christine Mason

A fundraising drive is underway to help a three-year-old boy with an extremely rare condition.

Brave young Joshua has Congenital Myotonic Dystrophy, which causes stiffening of the limbs.

He is believed to be one of less than 50 children in the country with the condition.

The toddler also has severe learning difficulties and is partially sighted – but he will be doing his best to take part in a sponsored walk this Sunday.

Friends of Joshua’s legal guardian Sarah Ruane are on a mission to raise vital funds for research into the condition and to pay for Joshua to travel to Utah University in America, where doctors have agreed to accept him onto a clinical trials programme for a new drug.

It is hoped this drug will slow down the condition and may even one day stop it altogether.

Full story in this week’s (11 September) Pocklington Post.